this was so incredibly awesome! this. this nails it. this is how i feel most days. somedays i get up, and i have a lot of spoons, and some days i wake up, and lose a spoon, and i realize that i already used today’s spoons yesterday…
i hope that some of you out there who know me, and haven’t yet really dealt w/ what is happening to me, take something away from this theory. it is the best explanation of what it’s like to suffer from an invisible chronic illness. i have been struggling w/ how to explain how to others exactly what it feels like (or to some, what the fuck it is) to have fibromyalgia.
i don’t blog a lot about the fibro. it really is a lot for me to deal w/ emotionally some days. this place is a bit of an escape from it. i mostly want to deal w/ FYIs and questions. occasionally i do rant a bit about the random things that it does to affect my life. the fatigue, the pain (oh FSM the pain), the insomnia (oh IPU the insomnia) and the frustration at my body not letting me do what i want to do. and let’s not even get started on what that has done to my ability to keep weight off. i fear it is going to always limit me.
especially since i have yet to find a doctor willing to put it on actual record and not just say it and treat me for it (if you are going to call it fibromyalgia, don’t you think it would help me out just a little to own up to it on my re
i will be here if you have any questions.
h/t to fibrofog, new on my blogroll












Consider reading my blog on this topic.
http://www.elyakatz.wordpress.com, click on “health” and look for a post on Fibro, on the left sidebar or search Fibromyalgia.
It’s not for everybody, but it’s working for me!
Great link. Makes long term illness ‘easily’ understandable for people like me, who don’t have illness that we don’t recover from fairly quickly.
i just love the way she was able to describe what i can’t…i can tell ppl that i am fatigued and that i hurt till the end of the day…but that really hit it home…or at least i hope it does…
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